Philip (Phil) England

2nd April : Trying to juggle fibromyalgia and helping my Dad who's not well is really getting to me. It's all falling on me to help keep the house tidy, keep the kitchen clean, and try to push the house forward to get sorted and moved along. Sometimes I just want to go to my sister's and shout at her entire family (I know that will cause more issues than it will solve), I'm not well and having to do it all is really annoying.  I have some wonderful friends who have been a massive help along the way, such as Neil, who helped me clean when Dad was in the hospital and after he got out for a vit. And then there's Carl, who was a star and a massive help as he got the kitchen cupboards on the wall.  I also have friends who listen to my outpourings. Thank you to those, Neil and Carl.... big time.  I try to push on through the Fibro and pain, but am very aware of my limits and know I do push through them, then wonder why I am rendered useless the next day. I get...

Wednesday 19th March: Well, I may have found a way to wake up not feeling too bad, but it's not sustainable. CBD oil every hour. Draw backs are lack of sleep, and I need to buy more CBD oil, almost used it all up. Have a feeling my need for CBD may rise ... so will need an oil tanker full. Pain is still there but I can get out of bed - it's at about 4 out of 10.  That was a stupid experiment.... I need sleep  #fibromyalgia #constantpain #chronicpain Thursday 20th March: Woops, I left my electric blanket on high heat, if I was a joint of meat I would be well cooked, it's as hot as hell under the duvet. I normally turn it down to half, but I was so tired due to lack of sleep last night. Can't tell what my body is doing as I think I cooked my back and other joints! I MUST phone Rheumatology at NPT hospital today, chase things up. So, after cooking myself when I slept, am up and moving about, but as I'm doing so can now feel the aches and pains, obviously the heat jus...

Wednesday 12th March: Had the initial persistent pain meet up, learnt about different pains, and different families of pain killers, most interesting. Good to meet with others in the same boat. Now to work out my pathway, starting with medication review. Thursday 13th March: Nero today, he knows when I'm feeling down, sat beside me most of today. He's such a good dog. When I do move to a ground floor flat or bungalow I need to get my own dog. Slight twinges set in early evening. Friday 14th March: 4am - waking up in early hours with your left arm feeling like you want to crack open the bone and scratch inside it.... another reason why I hate fibromyalgia. Neck and back in agony too but not as much, 8 out of 10 - need the toilet, but it's difficult to move. So need help with nights like this, but I can't predict a fibro flare up at all. Maybe I should have taken that flat in that complex, but wasn't ready for that. Looking at what the council have, I DON'T WANT...

Persistent Pain Service - My Journey Went to the initial Persistent Pain Service group. Learnt all about the service, which I found most interesting. Found out about the different types of pain, and it seems I fall in to a mixed pain group. Also the differences between accute and persistent pain. It was over with quicker than I thought it would be, seems like it was a gateway to the service. Now to figure out what pathway I need to take. On the sheet we were given its got a few options, I do feel a mix of them all would benefit me, including group therapy... at some stage. If you suffer with persistent pain, then please do get your health care provider or doctor to get in touch with the Persistent Pain Service in your local area. In the Swansea, Neath, Port Talbot and Bridgend area its based at NPT Hospital, and can be contacted on Port Talbot 862418 , and search Google for SBUHB Persistent Pain Here is a useful link for you  https://sbuhb.nhs.wales/hospitals/a-z-services/improving...

 Health Issues: Update Why is my right knee being a pain? It goes weak a lot of the time. I have had to get a crutch because when it plays up I feel a walking stick don't offer me the support that I need. I feel fed up , and when it goes weak when I am in my flat I am trapped inside . Sunday 30th June: Not long up, feeling a bit off this morning, hope that improves. Bit on the achy side, on my scale of 1 to 10, about a 5 Friday 28th June: Covered a show today, but as the afternoon went on my pain went from a 3 to a 7, hope it eases by tomorrow! Thursday 27th June: Pain at about 7 out of 10 this morning, did my Imraldi injection and within a few hours and a few gabapentin later pain had gone down to around my baseline pain level of about 4 out of 10. Wednesday 26th June: Really bad pain day - out of 10, its about a 9. Its more or less all over pain. Monday 24th June: Feeling wiped out, hardly no energy, pain at around a 7 out of 10. Knee really causing issues today, ok one mome...

Continuing struggle with Fibromyalgia As I have said before, it is a bit like an amplifier, turning up the volume on my pain and other issues. Just because I've not written about it, don't mean to say I'm not living it. My pain level most days is around 4 to 6 out of 10. The last few days, however, things have not been too good, as my Facebook posts show! THURSDAY 29th FEB Well, as you may know, I am always in pain to some degree and do push myself on a regular basis.  Well in the last few hours been getting twinges which point to one thing, a fibro flare up. It's been a while since I've had one, but here it comes, wonder what time it will show up? FRIDAY 1st MARCH Well I've been awake since about 2am, in agony, pain at about 9 out of 10, am all tingly and feels like bad pins and needles, with horrendous aches - it's one hell of a fibro flare up. Off to bed, still not right after flare up, feels different to past ones in a way. SATURDAY 2nd MARCH Didn't ...

October 2023   This is the month of my holiday to Austria & Slovenia! Wednesday 3rd October: Damn it, fibromyalgia strikes in the night again. My whole body is in agony, feeling extremely tingly and achy. Not even sure I can remember a warning sign of its impending visit yesterday 🥺 Not a way to be woken up in the night that's for sure. Think I may have forgotten my gabapentin though, so that could be why it's dropped by 😔 Thursday 5th October: Well, a sluggish day so far today, got Nero later (he always cheers me up big time, bless him) Doctor will be phoning later to discuss my diabetic readings of the last few days. Also today am waiting on Amazon delivery, and I think one other parcel too. My mind is going... I thought I had Amazon order coming today... guess who forgot to check out his order? never mind, will come tomorrow now. Had Nero today, he’s a fantastic dog, he looks after me, he’s like my shadow! Friday 6th October: Just gone 5am What the.... my lower back,...

June 2023 Another month, same ol' stuff going on. At the start of the month I managed a walk, only a gentle walk, but a walk nether the less, my body didn't thank me for it, day after the walk I was in agony.  Couldn't do anything around the flat at all. The dry weather although nice, is really not agreeing with me. As the humid weather kicked in around about the 9th of June my breathing became difficult. Waking up in bed full of sweat wasn't pleasant, combine that with chronic pain and Fibromyalgia amplifying it ... Not good. On Wednesday 14th I've got another laser eye zapping to get through... not looking forward to it though. As I get ready to head to the hospital, Wednesday 14th June, I am hoping it's the last of the laser zapping, I just want my vision properly back in my left eye.  Bit on the achy side again this morning which is making getting ready difficult, but as normal, I struggle on. Well, the laser eye zapping went ok, can see a bit clearer, but n...

  In to the fifth month of the year , still getting tired a lot, my blood pressure seems to be improving, and my diabetic blood sugar levels seem to be within a good range. Eye wise, I am due some laser zapping again to clear up as one specialist called it, frosting behind the lens that was put in, after that my vision should be ok, so am now on a waiting list for that!   5 th May 2023: Woke up by great pain in my right arm, right shoulder, top of my back and neck, feeling sick with the pain again too. Pain is at 9 out of 10 I would say.   8 th May 2023: Well, it’s my 48 th birthday today, kind of a quiet one, uneventful, but that’s ok. Pain at a capable level, felt a little queasy this morning but not sick though.   9 th May 2023: Managed to venture out today with Neil. Had a little walk along the beach foot path, got some good fresh sea air and some moody photos, here is one of them.... photo © Philip (Phil) England MMXX!!! 16th May 2023: Last...

  April 2023, and it started of with great pain.  Saturday 1st April 2023: Started off the new month with pain at about 5 out of 10, this increased to about 8 out of 10 as the day went on. Early to bed, pain killers had, lower back is in terrible agony, hurts to sit and stand - heating pad on, which is helping. Sunday 2 nd April 2023: Still very achy but less than I was yesterday when I went to bed, pain at about 6 out of 10. Seem to have a runny nose too. Saturday 8th April: So there are Semaglutide supply issues again. People seem to be getting hold of it somehow and selling it on the black market, the Semaglutide helps people lose weight it's been discovered, and people are using that and buying it. It's annoying because I need it to control my blood sugar, it's taken me ages to get to where I am, I'm off the insulin now, only having to inject once a week for my diabetes instead of every day, don't have to worry about constant testing (pricking my fingers to g...

March it is then , a new month and St. David’s Day!, just had to escape the flat today so ended up in Gloucester with Neil. Not too bad a day out all be it a bit cold and damp.   Thursday 2 nd March: Well after yesterday, I am in agony today. My back and my left hip are in great pain, lower back is the worst!     I hope it eases soon. The sun is out and shining in the window so will sit with my back to the window so the sun can work its magic, would rather the heat of the sun than force myself to take co-codamol. Saturday 4th March: So, it is Saturday, and I feel bored, trapped and stuck in a rut.  Look what happened when I tried to break out on Wednesday.... I caught a chill, and to make things worse, the friend I took with me also caught a chill.... I feel guilty  I'm too scared to try getting out of the rut I am stuck in again in case I catch something else!, you know, I think I may be becoming paranoid…. Wednesday 8th March: It's a snow day, and...

  Oh damn, fibro flare up, can hear the pain in my head, painful tingle all over... welcome to the new month 😓 Well, 1 st of the month, and after being woken up in the early hours, I got some cleaning bits done! Then I was looking in the hall cupboard for a trowel which I thought I had, as was going to go outside and take out dead growth from my tubs, and came over sick and seemed to have made my pain levels rise again.... damn it! I had such good intentions for this afternoon.   2 nd day of the month, its update time! Eyes: got more laser zapping tomorrow on my good eye to keep it good, will chase my bad eye appointment at the same time! Health: feeling better today than yesterday, I didn't really pace myself yesterday, as soon as I felt better, I threw myself into doing things, will I ever learn? Friday 3rd Feb: at the diabetic eye clinic for more laser zapping on my right eye, the good one to keep it good, but also had a scan of my left eye. It seems some...

New year, same shi.... ...you know what, let's change that bit, there are some things we can't change in our lives, but there is so many things we can, so lets put a positive spin on this and let's do it! Same old issues to start the new year. Still no change with the vision in my left eye, and still no change with other bits of my health either.   As the new year went on, and as we hurtle towards the end of the month, have been getting woken up with pain. Managed to speak to my doctor, who is going to be writing to the hospital specialists to sort out a further appointment for my aches and pains. She says it is inflammation causing me pain.   I’ve been on Imraldi injections :-   This information taken from www.ema.europa.eu Imraldi is a medicine that acts on the immune system and is used to treat the following conditions: plaque psoriasis (a disease causing red, scaly patches on the skin) psoriatic arthritis (a disease causing red, scal...

  December - the start of Winter... photo taken by Philip England And since the start of this month I have been without my Imraldi injection, this has seemed to cause more issues for my body to deal with, seems the fibromyalgia has taken note of this and been playing with me. I couldn't get my Ozempic, once weekly injection for my diabetes. Nowhere in Swansea had the 1mg dosage I normally have, I phoned NHS111 and even they couldn't locate any stock in the whole of South or West Wales. My GP, Dr Burke, managed to find out that my chemist had the 0.5mg dosage variety, so will have to double up on that one for now. This cold weather hasn't helped matters. My breathing has been hurting, I've been in pain my back and other parts, and haven't really been able to keep warm and stay warm. I’ve once again had issues with sickness first thing, especially today, Friday 16th December. Not too sure why, but took half a day to clear. Speaking of things clearing, my left eye is s...

  1st November 2022: Not much changes with the month, aches and pains continue. My eye is still a blur, no real sign of improvement, which is really pissing me off now big time. I'm supposed to be driving down to Surrey on 20th December to dog sit, at this moment in time I fear I won't be doing that. EDIT: I've been passed for driving, given the all clear by a field vision test So fed up with life, fed up of not being able to go places driving my self.  22nd November: For a while now, a number of years, I've been sick at least once a day. Not sure why, but there is no pattern to it, no set time of day. It's annoying, and a bit worrying, I also hear my stomach and intestines making noises. On top of this my left eye is still all a blur. 29th November: So as another month comes to an end, I am due to start more zapping of laser this time on my right eye (when my left one isn't clear to see out of yet!). On the plus side I am no longer on insulin and the doctor ...

October, and Autumn seems to have really arrived  with wind and rain! The early part of this month I felt very sluggish and tired, spent a lot of time in bed, I really think I have the seasonal blues!. Friday 7th: Had Nero as always during the day time, then in the evening had Cosmo and Harley, but before they arrived decided to invite Neil up to help me with them. Saturday 8th: Had a pain in my side when I woke up, it was there a little bit yesterday but only slight. Run Neil and the dogs over to his. In the evening pain was still there but worse, not bad enough to warrent phoning NHS111 or out of hours doctor. Sunday 9th: Feeling cold, and still have that pain, but it is easing. Monday 10th: Monday morning, start of a new week, same old problems. Back, neck and shoulders up to their usual thing, pain at a so-so level of 5 out of 10. I'm feeling cold and drained, but I must get the milk in though, so must summon up the energy to get out of bed! Tuesday 11th: The pain continues...