Philip (Phil) England

Wednesday 19th March: Well, I may have found a way to wake up not feeling too bad, but it's not sustainable. CBD oil every hour. Draw backs are lack of sleep, and I need to buy more CBD oil, almost used it all up. Have a feeling my need for CBD may rise ... so will need an oil tanker full. Pain is still there but I can get out of bed - it's at about 4 out of 10.  That was a stupid experiment.... I need sleep  #fibromyalgia #constantpain #chronicpain Thursday 20th March: Woops, I left my electric blanket on high heat, if I was a joint of meat I would be well cooked, it's as hot as hell under the duvet. I normally turn it down to half, but I was so tired due to lack of sleep last night. Can't tell what my body is doing as I think I cooked my back and other joints! I MUST phone Rheumatology at NPT hospital today, chase things up. So, after cooking myself when I slept, am up and moving about, but as I'm doing so can now feel the aches and pains, obviously the heat jus...

A friend of mine commented on  my post last night... "...Did you know they are no longer accepting fibromyalgia as a disability as Labour states it can be managed?" IF it can be managed, what with? my doctor has no idea what to prescribe me for it. Fibro affects people in many different ways. In my case it ramps up my daily pain, causes me to feel my bones are itching on the inside, I get brain fog and forget simple things.  It causes me stiffness and stops me in my tracks. I get woken all hours of the night, can't get back off to sleep. Can't get out of bed in the morning, even when accomplished that I end up trapped in my flat.  How can it be managed? I would like to know. Chain saw to chop off affected part? Sledge hammer to my head? I use part of my PIP to get CBD oil to take the edge off my pain, but even that don't get shot of it. I also use my PIP for my Motability car. Without that I would really be stuck. I suffer with social anxiety so public transport i...

Cons proposals for PIP Sunak and his government need flogging - end of! Here are his government's proposals relating to PIP. Awards for claimants with physical health conditions and those with mental health issues were called into question by Sunak. He argued that whilst some people need money for aids such as handrails or stairlifts “Often they’re already available at low cost, or free from the NHS or Local Authorities. And they’re one-off costs so it probably isn’t right that we’re paying an ongoing amount every year.” MY VIEW ON THIS: I need PIP for my motability car, also to get CBD and other natural remedies as I'm not a fan of co-codamol and other pain killers and things to make life easier that I can't get elsewhere, I buy my own walking sticks that go with what I wear, so they blend in and don't stand out, it helps my minds train of thought. In addition, claimants with mental health conditions are to be targeted because “for all the challenges they face it is n...

 Early May, and what a start to my birthday month it was 2nd May:  Every bone in my body is aching, my throat is sore, it hurts to talk, cold then hot then cold, been sneezing, been sick, got a headache... what is this thing I've got? and how have I caught it? Well it's not Covid, but still, how did I catch anything? I've kept wearing the mask even after the Welsh Government said we no longer had to. I've been really careful! 3rd May: Feeling a little better, but got a feeling my back is gonna be hitting me tomorrow 4th May: Just after 3am and OWWWWWWCCHHHH Aching from head to toe, slight high pitched noise in my ears, tingly all over, Fibromyalgia working with my Ankylosing Spondylitis to woke me up, hate this, I really hate this. Pain at level 9.5 out of 10 5th May: So after my full allowance of Co-Codamol, and Gabapentin backed up with 10 doses of CDB oil, the pain has FINALLY gone down to 7 out of 10, still not a good level but its getting there FACTS : The ...