Philip (Phil) England

  I have just the other day had my 'Migration to Universal Credit' letter through the post, so have filled in the online form and now wait. Getting it has made me decide to push on with more of a blog on Fibromyalgia and Anxiety, to name just two things that run my life. Just yesterday I made a massive decission to stop doing my voluntary work with SA Radio Live, the local community station for Swansea. There is a very good reason for this. I am finding my new time slot a difficult one to cope with. My slot was at the end of the day, and getting through it leaves me totally exhausted. It hasn't been an easy choice to make as I do live doing my show with them. At the same time, I have decided to keep doing my home recorded 1 hour show for Islands FM as this will give me a bit of an escape and take my mind of things in a small way. I do need to put my health first. I have joined a few groups on line for Fibromyalgia and am awaiting my GP to get me in with the Persistant Pain ...

  Rhumatology department at Neath Port Talbot Hospital refered me to the Fibromyalgia Clinic. I had a phone call from the clinic yesterday, and thought I would do a blog to show how my life an Fibro co-exist. I can tell you I have reminders on my phone and bits of paper pinned to the wall. Forgetting what I got up to do is the norm for me, as is forgetting words. Here we go then with the first night time report and the start of the day. Thursday 1st August: A night of interupted sleep, was too hot in the flat to sleep, the downside of a lack of sleep is a body that won't function as it should, so lets see how the day pans out. Pain this morning is at about a 5 out of 10, I took all my dose of Gabapentin yesterday. The day continued, and when I went to bed the pain had risen to about 6 out of 10. Friday 2nd August: In the early hours of this morning woke up to fibro tingling, but because I took all my doseage of Gabapentin, it didn't turn in to much. When I got out of bed my p...

Continuing struggle with Fibromyalgia As I have said before, it is a bit like an amplifier, turning up the volume on my pain and other issues. Just because I've not written about it, don't mean to say I'm not living it. My pain level most days is around 4 to 6 out of 10. The last few days, however, things have not been too good, as my Facebook posts show! THURSDAY 29th FEB Well, as you may know, I am always in pain to some degree and do push myself on a regular basis.  Well in the last few hours been getting twinges which point to one thing, a fibro flare up. It's been a while since I've had one, but here it comes, wonder what time it will show up? FRIDAY 1st MARCH Well I've been awake since about 2am, in agony, pain at about 9 out of 10, am all tingly and feels like bad pins and needles, with horrendous aches - it's one hell of a fibro flare up. Off to bed, still not right after flare up, feels different to past ones in a way. SATURDAY 2nd MARCH Didn't ...

My first ever book is out! MY LIFE IN BLOG FORM Welcome to my first ever book, it contains a number of my blogs, and some added extra bits from other social media outlets of mine. It follows my life since the first lockdown and focuses on my life. I do like cooking, and enjoy watching Saturday Kitchen as well as other shows! A cut of profits from the sale of each book will go to a Fibromyalgia charity, so please do buy a copy, either physical or electronic. It's on Amazon right now at this address https://amzn.eu/d/7C9NgbS It's in paperback or for kindle

October 2023   This is the month of my holiday to Austria & Slovenia! Wednesday 3rd October: Damn it, fibromyalgia strikes in the night again. My whole body is in agony, feeling extremely tingly and achy. Not even sure I can remember a warning sign of its impending visit yesterday 🥺 Not a way to be woken up in the night that's for sure. Think I may have forgotten my gabapentin though, so that could be why it's dropped by 😔 Thursday 5th October: Well, a sluggish day so far today, got Nero later (he always cheers me up big time, bless him) Doctor will be phoning later to discuss my diabetic readings of the last few days. Also today am waiting on Amazon delivery, and I think one other parcel too. My mind is going... I thought I had Amazon order coming today... guess who forgot to check out his order? never mind, will come tomorrow now. Had Nero today, he’s a fantastic dog, he looks after me, he’s like my shadow! Friday 6th October: Just gone 5am What the.... my lower back,...

I have been trying to raise awareness about Fibromyalgia for ages, and also have a car sticker in my car. In any health blog I try to include Fibromyalgia and how is it affecting how I am feeling. I have been a sufferer of Fibromyalgia for a number of years, it coupled with Ankylosing Spondylitis makes my life a living hell.  I think of Fibro as an amplifier for pain, seems to double or triple the pain I suffer with. Plus I've been getting more forgetful forgetting simple things like words and what I am doing. It also makes my body tingle and go itchy.  If I forget to take my gabapentin it's like asking for my body to be attacked. Why does Fibro do this to me? It's really affecting my life, I just hate it. My GP doesn't seem to know. Fibromyalgia seems to be shroud in mystery! If you suffer with Fibromyalgia , share your experiences here so others could benefit from anything we post. Useful websites to help: NHS https://www.nhs.uk/conditions/fibromyalgia/...

Another new month, we sure are zooming through 2023 aren't we! August started with a visit to Neath Port Talbot hospital and an appointment in the Rheumatology department. I had to score my aches and pains and the Fibromyalgia. I think I may have under scored them some what! Time to keep taking a record for this month starting with 2nd August! WEDNESDAY 2nd: Feeling run down and achy, about 5 out of 10. I did have an appointment to see the nurse at the surgery, but emailed to cancel as feeling less than well enough to venture out. BP FIRST THING 124 / 83    BLOOD SUGAR 6.9 THURSDAY 3rd: I HAD to venture out to get some bits. Went to Home Bargains, was pushing the trolley and my hip started playing up. My aches and pains this morning started as about a 4 out of 10. By the time I got back to the car it turned in to 6 out of 10. Still not finished I made my way to Morrisons. By the time I finished in there I was feeling very run down, every bone in my body and every joint was...

  As a new month starts, my lavender in the garden is looking good, the sweet peas have grown bloomed and are now looking a mess!, not seen many bumblebees about, hope the fuzzy little things are ok. Picked up my glasses from Specsavers, very happy with them, I also ordered two pairs from Glasses Direct, happy with those as well. This month is the month for getting back out in to life, I've booked to hire a camper van and am going to a music festival, volunteering at Big Love. It's been a while, but it has to be done.  My diabetes is under control, the diabetic nurse phoned and is happy, appointment made for later in the month to see her. Aches and pains - yes, still there, and the fibromyalgia is up to its tricks again! Well, I managed Big Love Festival, I managed the crowds, my anxiety did show its face in the form of sickness and stomach aches, but I did it. Life and socialising can resume for me now proper! I am so proud of myself for pushing me to do it. Hired a camp...

June 2023 Another month, same ol' stuff going on. At the start of the month I managed a walk, only a gentle walk, but a walk nether the less, my body didn't thank me for it, day after the walk I was in agony.  Couldn't do anything around the flat at all. The dry weather although nice, is really not agreeing with me. As the humid weather kicked in around about the 9th of June my breathing became difficult. Waking up in bed full of sweat wasn't pleasant, combine that with chronic pain and Fibromyalgia amplifying it ... Not good. On Wednesday 14th I've got another laser eye zapping to get through... not looking forward to it though. As I get ready to head to the hospital, Wednesday 14th June, I am hoping it's the last of the laser zapping, I just want my vision properly back in my left eye.  Bit on the achy side again this morning which is making getting ready difficult, but as normal, I struggle on. Well, the laser eye zapping went ok, can see a bit clearer, but n...