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Showing posts with the label #DWP

Trial Error Pain and PIP

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Wednesday 19th March: Well, I may have found a way to wake up not feeling too bad, but it's not sustainable. CBD oil every hour. Draw backs are lack of sleep, and I need to buy more CBD oil, almost used it all up. Have a feeling my need for CBD may rise ... so will need an oil tanker full. Pain is still there but I can get out of bed - it's at about 4 out of 10.  That was a stupid experiment.... I need sleep  #fibromyalgia #constantpain #chronicpain Thursday 20th March: Woops, I left my electric blanket on high heat, if I was a joint of meat I would be well cooked, it's as hot as hell under the duvet. I normally turn it down to half, but I was so tired due to lack of sleep last night. Can't tell what my body is doing as I think I cooked my back and other joints! I MUST phone Rheumatology at NPT hospital today, chase things up. So, after cooking myself when I slept, am up and moving about, but as I'm doing so can now feel the aches and pains, obviously the heat jus...

Fibro - It Continues

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  I have just the other day had my 'Migration to Universal Credit' letter through the post, so have filled in the online form and now wait. Getting it has made me decide to push on with more of a blog on Fibromyalgia and Anxiety, to name just two things that run my life. Just yesterday I made a massive decission to stop doing my voluntary work with SA Radio Live, the local community station for Swansea. There is a very good reason for this. I am finding my new time slot a difficult one to cope with. My slot was at the end of the day, and getting through it leaves me totally exhausted. It hasn't been an easy choice to make as I do live doing my show with them. At the same time, I have decided to keep doing my home recorded 1 hour show for Islands FM as this will give me a bit of an escape and take my mind of things in a small way. I do need to put my health first. I have joined a few groups on line for Fibromyalgia and am awaiting my GP to get me in with the Persistant Pain ...

Cons proposals for PIP

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Cons proposals for PIP Sunak and his government need flogging - end of! Here are his government's proposals relating to PIP. Awards for claimants with physical health conditions and those with mental health issues were called into question by Sunak. He argued that whilst some people need money for aids such as handrails or stairlifts ā€œOften theyā€™re already available at low cost, or free from the NHS or Local Authorities. And theyā€™re one-off costs so it probably isnā€™t right that weā€™re paying an ongoing amount every year.ā€ MY VIEW ON THIS: I need PIP for my motability car, also to get CBD and other natural remedies as I'm not a fan of co-codamol and other pain killers and things to make life easier that I can't get elsewhere, I buy my own walking sticks that go with what I wear, so they blend in and don't stand out, it helps my minds train of thought. In addition, claimants with mental health conditions are to be targeted because ā€œfor all the challenges they face it is n...

Early May 2022

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 Early May, and what a start to my birthday month it was 2nd May:  Every bone in my body is aching, my throat is sore, it hurts to talk, cold then hot then cold, been sneezing, been sick, got a headache... what is this thing I've got? and how have I caught it? Well it's not Covid, but still, how did I catch anything? I've kept wearing the mask even after the Welsh Government said we no longer had to. I've been really careful! 3rd May: Feeling a little better, but got a feeling my back is gonna be hitting me tomorrow 4th May: Just after 3am and OWWWWWWCCHHHH Aching from head to toe, slight high pitched noise in my ears, tingly all over, Fibromyalgia working with my Ankylosing Spondylitis to woke me up, hate this, I really hate this. Pain at level 9.5 out of 10 5th May: So after my full allowance of Co-Codamol, and Gabapentin backed up with 10 doses of CDB oil, the pain has FINALLY gone down to 7 out of 10, still not a good level but its getting there FACTS : The ...