Philip (Phil) England

  Rhumatology department at Neath Port Talbot Hospital refered me to the Fibromyalgia Clinic. I had a phone call from the clinic yesterday, and thought I would do a blog to show how my life an Fibro co-exist. I can tell you I have reminders on my phone and bits of paper pinned to the wall. Forgetting what I got up to do is the norm for me, as is forgetting words. Here we go then with the first night time report and the start of the day. Thursday 1st August: A night of interupted sleep, was too hot in the flat to sleep, the downside of a lack of sleep is a body that won't function as it should, so lets see how the day pans out. Pain this morning is at about a 5 out of 10, I took all my dose of Gabapentin yesterday. The day continued, and when I went to bed the pain had risen to about 6 out of 10. Friday 2nd August: In the early hours of this morning woke up to fibro tingling, but because I took all my doseage of Gabapentin, it didn't turn in to much. When I got out of bed my p...

  I'm feeling fed up. My health is really getting to me big time. My fortnightly injection seems to not be as efficiant as it used to be, my medication seems to be less good at doing what it should be doing. Now I know I can't be put on anything stronger as my stomach wont be able to deal with it... damn having a fragile one! I decided at the start of the new year to keep pushing to find a job to do. Now I know I am limited, but do know what I am good at.  I have been looking for social media roles, because I know I am good at that, and back during the pandemic did an online course on it that I passed. I am also looking for radio and tv work, as I have experiance of both, and again during the pandemic, did a basic online journalism course. I keep getting knocked back, and know the reason why. It's not because of lack of skills or determination, it is the fact I have health issues and companies would rather take on someone who is fully able bodied and fit.  This makes me s...

I have been trying to raise awareness about Fibromyalgia for ages, and also have a car sticker in my car. In any health blog I try to include Fibromyalgia and how is it affecting how I am feeling. I have been a sufferer of Fibromyalgia for a number of years, it coupled with Ankylosing Spondylitis makes my life a living hell.  I think of Fibro as an amplifier for pain, seems to double or triple the pain I suffer with. Plus I've been getting more forgetful forgetting simple things like words and what I am doing. It also makes my body tingle and go itchy.  If I forget to take my gabapentin it's like asking for my body to be attacked. Why does Fibro do this to me? It's really affecting my life, I just hate it. My GP doesn't seem to know. Fibromyalgia seems to be shroud in mystery! If you suffer with Fibromyalgia , share your experiences here so others could benefit from anything we post. Useful websites to help: NHS https://www.nhs.uk/conditions/fibromyalgia/...