Trial Error Pain and PIP

Wednesday 19th March: Well, I may have found a way to wake up not feeling too bad, but it's not sustainable.

CBD oil every hour. Draw backs are lack of sleep, and I need to buy more CBD oil, almost used it all up.

Have a feeling my need for CBD may rise ... so will need an oil tanker full.

Pain is still there but I can get out of bed - it's at about 4 out of 10. 

That was a stupid experiment.... I need sleep 

#fibromyalgia #constantpain #chronicpain

Thursday 20th March: Woops, I left my electric blanket on high heat, if I was a joint of meat I would be well cooked, it's as hot as hell under the duvet.

I normally turn it down to half, but I was so tired due to lack of sleep last night.

Can't tell what my body is doing as I think I cooked my back and other joints!

I MUST phone Rheumatology at NPT hospital today, chase things up.

So, after cooking myself when I slept, am up and moving about, but as I'm doing so can now feel the aches and pains, obviously the heat just masked them.

Friday 21st March: One of those days, my thumb was already playing up, then as day went on caught my little finger in the drawer, dropped a tin on my right foot, and as I was getting ready for bed, closed the curtains bringing the curtain pole down narrowly missing me.

Dad wasn't well today, his breathing was bad, so going over on Wednesday to help with kitchen with Carl, not that I can help much... I wish I could help my Dad more than I can. 

Saturday 22nd March: Here's an insight that I've not brought up on my blog, daily struggles. With the pip changes mentioned a lot these last few weeks on social media, decided it's high time.

My back is playing up again and shoulders, so I am stuck in the same t-shirt that I've worn for the last 6 days, I need help, I really need to ask for it, but would rather struggle. 

I should be taking my Monjaro every Thursday, but in recent weeks have forgotten. I am remembering my morning tablets, but seem to forget things that are out of sight in the fridge.

Sunday 23rd March: Woken up by pain at 1am, combined with dizzy headache and throwing up, also got slight shivers too... I hate my life.

7:30am, feeling fed up, can hardly move this morning. My right knee went weak yesterday, never did that before, always been the left. Need the toilet urgently... this could get messy. 

9am, after taking a gabapentin and hour and half of electric blanket, managed to move enough to sit up and grab my walking stick, now to get to the toilet before a mess occurs.

Monday 24th March: On the pain scale today it's 4, better than it's been in a long time. Thumb still hurting though. Must pop to my Dad's today.

EDIT at 8:25am - Spoke too soon, climbed to 5, actually between 5 and 6.

EDIT at 12:55pm - Pain now at 6

EDIT at 5pm - 6 still, can feel back twinges though.

Tuesday 25th March: Woken up in pain and feel sick with it again, don't think I pushed myself yesterday, level of pain is about a 7 or 8. Hate being in pain, every day it Is there to some degree. It just gone 4:30am, how long before I can get out of bed? Gabapentin taken, CBD drops too and electric blanket on. 

With the changes to PIP coming in next year, I am scared I will loose the care component meaning I won't afford the CBD oil and will be in more serious pain for longer, rendering me useless for more of the time.