Fibro, pain & benefits

A friend of mine commented on  my post last night...

"...Did you know they are no longer accepting fibromyalgia as a disability as Labour states it can be managed?"

IF it can be managed, what with? my doctor has no idea what to prescribe me for it. Fibro affects people in many different ways.

In my case it ramps up my daily pain, causes me to feel my bones are itching on the inside, I get brain fog and forget simple things. 

It causes me stiffness and stops me in my tracks.

I get woken all hours of the night, can't get back off to sleep. Can't get out of bed in the morning, even when accomplished that I end up trapped in my flat. 

How can it be managed? I would like to know. Chain saw to chop off affected part? Sledge hammer to my head?

I use part of my PIP to get CBD oil to take the edge off my pain, but even that don't get shot of it. I also use my PIP for my Motability car. Without that I would really be stuck.

I suffer with social anxiety so public transport is a big no, and around here it is unreliable and always full according to friends that use it.

Fibromyalgia coupled with Ankylosyn Spondylitis which is affecting my whole body is not a good combination at all.

I need my PIP to at least attempt to lead an independent life. It's what it's there for. Without it I will fail to function.

No one will employ me, I know, I've gone after employment and had numerous knock backs.

I would love to work in radio but that won't happen, it's all networked now, even BBC local stations.

I've signed up for Persistent Pain Service after my GP referred me to it. Hope I can get some help for the pain, from the debilitating pain I live with. It's a long complex road ahead.

The government say benefits are there to help the most vulnerable people, I am one.

I would love to work, I've applied for employment and knocked back. Companies can't adapt to someone with health issues, and can't employ someone who may not be able to get out  of bed of a morning.

THIS MORNING I am exhausted after being sick half the night, my back and neck are killing me, my right hip is in so much pain I want to crack it open to scratch inside it. I'm not sure I have the energy to get out of bed, and I need to pee 😭

FOLLOWING GOVERNMENT STATEMENT ON WELFARE REFORMS 

Sounds like the government will ACTUALLY improve the welfare system. Giving people a chance to try work without affecting their benefit.

Those who may/will never work will be more, so they can have a better quality of life.

UC will get more, and those with conditions that will never improve will never have to be reassessed.

Sounds like their plans for PIP will improve it.

My Ankylosyn Spondylitis is not going to get better, I was told this, the injections just stop it from getting worse. I used up my last injection last week, with no sign of another prescription.

The scaremongering has really affected lots of people in a number of groups.

I feel a bit more positive going forward.