Posts

Fibro - It Continues

Image
  I have just the other day had my 'Migration to Universal Credit' letter through the post, so have filled in the online form and now wait. Getting it has made me decide to push on with more of a blog on Fibromyalgia and Anxiety, to name just two things that run my life. Just yesterday I made a massive decission to stop doing my voluntary work with SA Radio Live, the local community station for Swansea. There is a very good reason for this. I am finding my new time slot a difficult one to cope with. My slot was at the end of the day, and getting through it leaves me totally exhausted. It hasn't been an easy choice to make as I do live doing my show with them. At the same time, I have decided to keep doing my home recorded 1 hour show for Islands FM as this will give me a bit of an escape and take my mind of things in a small way. I do need to put my health first. I have joined a few groups on line for Fibromyalgia and am awaiting my GP to get me in with the Persistant Pain

In My Opinion: PPH Failing

Image
  In My Opinion: Failing at Prince Philip Hospital My Dad went in for what should have been a simple endoscopy procedure, but due to confusion, the doctor dealing with him today had to chase another doctor elsewhere in the hospital. All patients note should be 100% clear so everyone concerned can see what's been done or needs to be done. The health board that runs Prince Philip Hospital, Hwyel Dda, needs to ensure this is addressed. It is a failing that has wasted time, time that could be spent getting down waiting lists. This hospital is due to have its hours slashed at it's Minor Injury Unit, which I feel is wrong.

Mental Health Update September 2024

Image
  Mental Health Update - September 2024 I'm wondering if the ammount of physical activity in ones life can affect your mental state? Here's two days from my Fibro blog: Saturday 14th September:  Pain at about 6 out of 10 this morning. Off to Radio Tircoed for about 4pm to train a few people up on Myriad system, then do my show. Felt totally drained when I got home. Pain at about 8 out of 10. May have over done today. You know, going to do something while good to be busy, it totally can floor you mentally and physically. Sunday 15th September:  Off up to Radio Tircoed today, pain first thing at about 6 out of 10, didn't sleep too well last night, but must get to Tircoed for about noon. Done a bit more training then covered for Karl between 1pm and 4pm, the emails didn't want to be opened this afternoon on the main studio computer, lucky one in the production room was letting them be opened!. Not a bad show, but by the time I got home felt drained and my pain was at about

Taps - it's a wasteful world

Image
Leaking Taps Well Caredig are here to fix dripping tap, they don't change washers any more, they change the taps! What a wasteful world we live in. I said to the chap why not change just the washer? seems a waste not to, so he went to see if he had just a washer and he would Job done, and the taps were changed

SA RADIO LIVE is coming!

Image
 SA RADIO LIVE is coming! From 30th September 2024 at 7am, Swansea's TRULLY local radio station will be SA RADIO LIVE. The station will feature ex-Swansea Sound and The Wave presenters, along with some of the current Radio Tircoed presentation team. Join Shaun Tilley for Breakfast and Steve Dewitt mid-mornings from 30th September.  Other voices from the past include Griff Harries, Siany, Leighton Jones, Mark Powell, Matthew Morrissey, James Lewis, Smithy, Mike Menner, Chris Harper, Karl Burtonshaw and more! You can also continue to hear Dave Hixson, Dave O'Rourke, Serious Jones, Mike Lewis and others currently on Radio Tircoed. I will also continue to host In The Groove on a Saturday Night, in a new time slot of 10pm until 1am. I will also be cropping up at other times of the week as I fill in for those who need time off from their shows! There have been some test transmissions for SA RADIO LIVE which you can listen again - just follow these links TEST 1 https://philipphilengla

Mental Health Update - July 2024

Image
  Here is an update on my mental health 1 ( July 2024 ) During the pndemic my mental health took a massive hit. My anxiety was through the roof. I went to a big festival, first really big one since 2019. I managed it but had a lot of time either alone or with close friends at camp. I couldnt do more than 15 mins in a crowd without feeling overwelmed and having to escape them. I avoided the enclosed areas of the festival where crowds were, didn't feel like I would be safe in them. In my mind, if I can't see a way out of a crowd then I don't want to be in it. I was on antidepressents, but was not keeen on them, still am not. I am using a little cbd oil, but this is expensive, but it is helping. Depression is still in my life, but i'm on the fringes of it, since I have started back at Radio Tircoed, I have focus on something I enjoy. Tuesday 24th September:   I'm having to ask my self has my mind been on tasks fully, and have to say, no it hasn't. Dad isn't wel

Fibro in my world

Image
  Rhumatology department at Neath Port Talbot Hospital refered me to the Fibromyalgia Clinic. I had a phone call from the clinic yesterday, and thought I would do a blog to show how my life an Fibro co-exist. I can tell you I have reminders on my phone and bits of paper pinned to the wall. Forgetting what I got up to do is the norm for me, as is forgetting words. Here we go then with the first night time report and the start of the day. Thursday 1st August: A night of interupted sleep, was too hot in the flat to sleep, the downside of a lack of sleep is a body that won't function as it should, so lets see how the day pans out. Pain this morning is at about a 5 out of 10, I took all my dose of Gabapentin yesterday. The day continued, and when I went to bed the pain had risen to about 6 out of 10. Friday 2nd August: In the early hours of this morning woke up to fibro tingling, but because I took all my doseage of Gabapentin, it didn't turn in to much. When I got out of bed my p